I sat across the room from the doctor explaining to her that I had been through the ringer trying to find someone, anyone, in the medical industry who would help me manage whatever it was going on with my body. I had been to a lot of doctors over the years and the only thing I knew for certain was that none of them knew what to do with me.

There were a few who took me seriously and were willing to try to find answers, or at least they tried to give me a little relief; but most had dismissed me and my lengthy list of symptoms.

I told this doctor I was seeing a natural practitioner for supportive therapies and that I was seeking a doctor who would be willing to provide the medical side of the equation, whatever that means.

She listened briefly and then stated bluntly that she didn’t think she would be the right fit for me because “there was no scientific evidence that natural therapies were helpful” and she didn’t want to work with a patient who was involved in that type of care.

I don’t know exactly when I realized doctors aren’t responsible for my care, but this particular visit was one that sticks out as a reminder that I am the one who owns my care.

I have a phenomenal team of doctors now that include a Lyme Literate MD, a pain management MD, a specialized upper cervical chiropractor and an alternative medicine doctor.

They may not always agree on everything but they work together and they put me first. As my LLMD stated during my last visit – it’s not about ego, it’s about working together to help me get better.

It took a lot of years (and upwards of 50 different doctors) to find this group. It has been a frustrating journey – oh the stories I can tell.

Here’s my advice to anyone who is struggling to find effective care:

• Communicate – be clear about your needs and things that concern you. If your doctor disagrees to a point he or she isn’t willing to work you – move on, don’t waste time with a someone who doesn’t respect your opinions.
• Participate in decisions – doctors may have the technical training, but you know your body. Speak up if the treatment protocol doesn’t sit well.
• Ask questions – so you can make informed decisions.
• Take someone with you to appointments – it helps to have a second set of ears and someone to take notes, but they should also be your advocate and stand up for what you want.
• Don’t settle – if you aren’t getting what you need or if you aren’t being treated with courtesy and respect, find another doctor.

• Don’t give up – it may take some time to find the right doctor for you – keep looking, don’t waste time with ones who aren’t a fit for your needs. It may take time, but it’s worth it.

On a final note – health is critical to every other area of life. If you are chronically sick, it’s time to make your sickness (and your health) THE priority. Find the doctors. Research alternative solutions. Do the therapies. Work toward getting better.

And most of all – NEVER, EVER GIVE UP.