Friends

My dad was in the army when I was young - so we moved around a bit, but ended up in Hawaii for 4 years. My dad was a musician so there were often jam fests most of my young life. I grew up on 70s rock. But my folks found Cecilio & Kapono in…

You’re Beautiful…

God has been dropping bits of encouragement on my life today - it's been more of an "in your face" kind of message that the fight is not over yet (FK&C). If you are feeling defeated right now, if your pain is too much to bear, if like me you are feeling fat and ugly…

Thrive – Switchfoot

Let's be honest - if you have a chronic sickness, this song is how you probably feel most of the time. There's power in being able to admit "I'm not alright". Click Here - Video: Thrive by Switchfoot Lyrics: Been fighting things that I can't see it Like voices coming from the inside of me…

Disturbed – The Sounds of Silence

Simon & Garfunkel's famous song has always touched my soul, but it wasn't until I was watching figure skaters Vanessa James and Morgan Cipres performing to a remake that I fell in love with the depth and sentiment of the lyrics. I am a talker. I love to talk, I think it's important in any…

Head Above Water

Some days my sickness is only as deep as my knees. I may have a mild headache, a little joint pain, and maybe some nausea...but I'm able to get out of the house, go to the store, cook a meal, spend time with my family and maybe even do a little laundry. This is a…

Here Comes The Comeback

One of the hardest things I've had to adjust to as a chronically ill person is balancing the various worlds I live in. I live in 7 worlds. Occasionally two or three of these worlds harmoniously overlap, but more often than not, these distinct worlds live in extreme competition with each other. 1.) Faith in,…

Walk As Lions

It’s been over a week since I left Biologix. I am continuing to improve - still have a lot going on (pain - lower but there every day, tachycardia, nausea and digestive issues, coughing, shortness of breath, weakness, etc). I’m sleeping - which is huge. And I'm rebuilding strength daily. Every day is hard. Every…

Fear Is A Liar

We all start out thinking this is temporary. We believe some doctor or potion will eventually get us back to the state of normalcy to which we have become accustomed. So when does that change? At what point during sickness do we shift to the mindset that it may not happen. And what causes that…

It’s Not Over Yet

It's Not Over Yet (For King and Country) This song is for every Lyme warrior. We have no official prognosis. We don't know when, or if, we will ever be well. We simply wake up every day and fight. And we keep fighting - cuz it's not over yet.