Recently, I started following the story of a little girl who suddenly stopped talking. Her parents were eventually able to learn about Lyme Literate Medical Doctors and found proper treatment for their daughter. She is thankfully improving, but has a long road ahead.

Today, I was reading a follow up post on the girl and one of the comments hit my heart. A woman posted a picture of a bit on her son. It was a clear bullseye rash – which is tell-tale of Lyme disease.

It makes me so mad that people are not able to get proper treatment for themselves, or their children. Lyme disease can be treated if caught early. But most people don’t know they need treatment, and if they do, it’s hard to find a doctor who will treat completely. Those doctors are expensive and not covered by insurance.

So – this is an educational post to hopefully help educate people on Lyme & other tick-borne diseases.

I beg you – even if you know a little about Lyme disease, please take the time to read the rest of this post. The videos below are excellent for understanding the challenges with getting proper diagnosis and treatment. I encourage everyone to take the time to watch these.

About Lyme

Lyme is the most common vector borne disease in North America. The CDC believes there are 450,000 new cases of Lyme each year. Lyme experts believe that number is much higher.

Bullseye rashes are not as common as the CDC states – most people who are diagnosed with Lyme never get a bullseye (or don’t see it),

It’s very possible to get Lyme without ever seeing a tick. The smallest (and most potent) ticks are the size of a poppy seed. Would you even know it’s a tick?

Standard testing for Lyme is highly inaccurate. I had 5 negative tests – the 6th was positive per the specialty lab, but the CDC still does not acknowledge it.

Lyme bacteria are spiral shaped (called spirochetes) so they can drill through every part of your body causing literally any symptom you can imagine. Some of the more common symptoms include:

  • Headaches
  • Joint pain
  • Muscle pain
  • Rashes of all kinds
  • Cognitive Issues
  • Fatigue
  • Neuropathy
  • Digestive issues
  • Word finding problems
  • Neck pain
  • Sleep issues
  • Fever
  • Sweats
  • Chills
  • Heart Issues
  • Depression
  • Air hunger
  • Tippy feeling

There are countless other symptoms – if you develop several different symptoms and doctors can’t figure out what it is, please consider Lyme.

Lyme is found in all 50 states and every country around the world.

The CDC claims Lyme is not common in California. However, Stanford did a study of ticks in all parks in the Bay Area and found that at least 50% of ticks in every park were in fact infected with Lyme disease.

Early treatment is critical! So don’t take it lightly – if you suspect Lyme, get to the right doctor.

DO NOT SEE A MAINSTREAM DOCTOR FOR LYME! I can’t stress this enough. They are not experts and in general, most mainstream doctors do not have enough good knowledge to treat the standard patient. They also cannot treat more than 28 days. Most people need longer treatment – so find a doctor who can and will treat you until the symptoms are completely gone. These doctors are called Lyme Literate Medical Doctors (LLMD’s) and are trained by the International Lyme and Associated Disease Society (world-wide experts).

There are natural treatments. YOU decide what’s best for YOUR body.

Not Just Lyme

Most patients have more than just Lyme. There are other tick-borne diseases, called co-infections. There are also several co-conditions that often accompany Lyme patients who have been undiagnosed for a long time.

Co-infections

  • Babesia
  • Bartonella
  • Ehrlichiosis
  • Anaplasmosis
  • Ricketsia
  • Colorado Tick Fever
  • Pacific Coast Tick Fever
  • Q-fever
  • Tick-borne Relapsing Fever
  • Tick Paralysis
  • Tularemia
  • Heartland Virus
  • Bourbon Virus

Co-Conditions that are common with lyme patIENTS

  • Postural Orthostatic Tachycardia Syndrome
  • Mast Cell Activation Syndrome
  • Cranial Cervical Instability
  • Alpha-gal Syndrome
  • Pediatric Autoimmune Neuropsychiatric Disorder Syndrome

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