One of the most challenging aspects of chronic Lyme disease is that its neurological effects are often dismissed or misdiagnosed.

On a call yesterday, one of my daughters doctors (who treats one of her symptoms) questioned why my daughter hasn’t been able to do one simple task on a regular basis.

I diplomatically explained (again) that my daughter has a lot of health challenges and some of her symptoms (tremors, pain, neurological issues) have been significant lately.

But inside, I was screaming “BECAUSE SHE HAS LYME DISEASE DAMN IT!”

The article below discuss how Lyme affects the brain and central nervous system.

https://www.lymedisease.org/neuro-lyme-hyperbaric-oxygen/

“The bacteria that cause Lyme disease, Borrelia burgdorferi, are spirochetes that can invade the brain, leading to symptoms such as brain fog, memory problems, anxiety, depression, and even issues with movement, coordination, and balance.”

All too often, these symptoms are not managed well. Physical symptoms like pain and digestive distress are easier to focus on and often more commonly discussed.

No one wants to say “hey, I’m having a hard time with cognitive issues right now” or “I seem to have difficulty remembering to… fill in the blank: take pills, do my therapies, eat food, etc.”.

I’ve started to be more open when I’m struggling with various issues. Lately I find myself telling even strangers “I’m having a hard time finding the right words so bear with me”.

They may not understand why but I hope it excuses me a little when I stumble through sentences.

If you’re struggling with neurological dysfunction, be real about it. Talk about it. Yes it’s embarrassing!

Healthy people may not ever understand, but maybe talking about it will make them a little more compassionate about what we’re going through.