I hate being sick. Hate it. It’s impossibly hard most days. I cry. I get mad. I feel hopeless at times. It’s ok to have a pity party just don’t unpack and live there! But I choose how to live with this sickness. I choose love. I choose joy. Yes - it’s a choice. Every…
I suffered sickness and pain for many years without a diagnosis. I saw a multitude of doctors - most of whom dismissed me as a hypochondriac when I started to list the multitude of symptoms. They would say things like: “Imagine yourself feeling better, and you will”“Let’s work one symptom at a time - what’s…
I wake up by 5am every day...no matter what time I go to sleep or how much I wake up. 5-7 am - that’s it. That’s all I have. Every day. 2 hours, 3 max. I get so discouraged when I start to feel the warmth of illness pour over my body. My feet begin…
Today marks 7 years since I began sharing my story here on WordPress. My First Post Here - Why I Started a Blog I haven't been consistent and I'm sure sometimes my posts didn't make sense to anyone but me. However I pray that at least some of what I've written has resonated in some…
It's not enough to just survive. One of the most frustrating things about this illness is not knowing what triggers a crash. It's all guesswork! I started new meds, I visited a place that I believe had mold, the weather changes, moon changes, dormant disease popping up - my body reacts to all of this.…
Thoracic Outlet Symdrome (TOS) is a group of conditions that essentially affect the nerves or veins flowing through the upper thoracic down into the arms and hands. I know I shouldn’t be surprised when pain hits me, especially any pain stemming from the spine - nonetheless, it caught me off guard today. Ironically, I was…
Lymedisease.org article I’ve been diagnosed with multiple tick diseases. The CDC does not include my illnesses in their counts. What do COVID19 and LYME have in common? The government won’t allow proper diagnosis or treatment of either. None of us need be sick. But here we are. It’s time to be angry. It’s time to…
This photo was taken 7 years ago. I was at Stanford Medical Center getting bi-weekly lidocaine infusions. The infusions helped reduce pain - but my body began slowly rejecting it. My last injection ended with me being super loopy and slurring my words. It was a horrible time of life - pre-diagnosis, bed-ridden & using…
God has been dropping bits of encouragement on my life today - it's been more of an "in your face" kind of message that the fight is not over yet (FK&C). If you are feeling defeated right now, if your pain is too much to bear, if like me you are feeling fat and ugly…
I participate in several forums focused on specific health conditions. I initially joined them in the hopes of learning more about some of the conditions I have. What I’ve found is that most of the people participating are in the early stages of some sort of sickness - or at a minimum, they haven’t yet…
PhilippiJoy 