Lately I’ve been talking to a lot of people who are sick; I think they don’t relate because I already have a diagnosis. I went 8 years undiagnosable (no – it’s not a word, but I like it and for the sake of today’s discussion, I’m gonna claim it). Below is a chart of what…
How are you?
How are you? I have become resentful of this question. People who live with extreme chronic pain just don’t have a simple answer to this question. I have a lot of bad nights, but last night was absolutely miserable. I took a pain pill before bed but woke up in the middle of the night…
Communicating With A Lymie – Do’s and Don’ts
Disclaimer: I do a disclaimer when I am about to say things that may come across the wrong way. This is not directed at anyone specifically – it’s really just general thoughts I’ve had over the last few years and now see happening to others as well. I am hoping that what I write here…
Strange Things…
...like the feeling that a long, fat needle just stabbed me in the heal of my foot and is lodged deep into the bone.
One Good Day
Friday. Yes, Friday was a good day. Don’t get me wrong – emotionally, spiritually, and usually mentally, most days are good. But physically – well, that’s a different story. If you’ve read my previous posts, you know the pain and weakness I suffer on a daily basis. But I wonder how many people really understand…
A Year of Treatment
This is what a years worth of treatment looks like. More than 50 IV bags, countless pills, powders, and drips. Is it worth it? Yes. It most definitely is. I remember a year ago when I would wake up in the middle of the night screaming from pain that felt like a knife in my…
TMJ
When we were kids, my brother would ask, "Does your face hurt?" I would answer "no, why?" He would reply "because it's killing me!" I can't stop thinking about that today, because my face actually does hurt. A whole lot! I have had TMJ for years but it has never been more than a minor…
Where Is The Love?
Disclosure: As I started to write this post in my mind, it occurred to me that my words could be taken as offensive to people, so I want to start by stating 2 things:This is not about you. This is something God has convicted ME of doing. So in the words of an old, wise…
Giving Up the Fight
I have been making a lot of decisions lately about the way I structure my life – well, to be honest, God is making those decisions for me and then letting me come to terms with it. And if I’m gonna really lay it all out there – I haven’t always been willing to go…
7 Things NOT to Say to a Lymie
I know that people generally say things out of love and that comments made about lyme disease are not intended to be hurtful, but sometimes words intended in love can bring heartache and make a person feel so alone and misunderstood. I have heard from other lymies that they too have been crushed by similar…
PhilippiJoy 