Drowning

This represents so clearly how many Lyme patients feel when they are dismissed by doctor after doctor after doctor. I don’t know the exact number of doctors I’ve seen over the years but it’s well over 30...maybe 40 or 50. Many have told me that I’m not sick because my labs are normal. It took…

20 Seconds of Insane Courage

“You know, sometimes all you need is twenty seconds of insane courage. Just literally twenty seconds of just embarrassing bravery. And I promise you, something great will come of it.”Benjamin Mee, We Bought a Zoo I’m stepping out in faith right now trusting that God will move mountains in my community. This wildfire is spreading…

The Teeter Totter

Yesterday was a decent day, in spite of the overwhelming chaos - maybe it was just the adrenaline, I don’t know, but I was up a good portion of the day and I wasn’t in horrible pain, so I’ll call that a win. Today I woke up with lots of pain, extreme fatigue and just…

Are You Not Feeling Well?

A few days ago, someone asked me “are you not feeling well?” My response was bitter and critical - and I haven’t stopped thinking about it. This is not an uncommon question - but sometimes it catches me off guard and I’m pretty sure my response can be a little curt. It is not their…

I Hate Losing

“I hate losing even more than I like winning. And there’s a difference.” Billy Beane Moneyball There IS a difference! I’ve been seeing a naturopath who has slowly been getting me out of bed and able to do a little here and there. The last few days have been very noticeable. It’s exciting. It’s encouraging.…

Reading Labels

As much as you can, buy fresh foods - meats and veggies. A good rule of thumb is to shop the outside aisles of the grocery store. When you buy packaged foods, read the labels and know what's in it. This includes things like cheese, lunch meat and pasta. If it comes in a package,…

A Life of Options

I remember times in my life when I looked at the wide open world and thought about the different options I had...career choices, where I'd live, where I'd vacation. Those options are still available but I realized this morning my life has become a series of options - options that sometimes aren't really options. We…

The People in Your Neighborhood

When I was a kid, I loved this Sesame Street song: These are the people in your neighborhood - in your neighborhood- in your neighborhood Their the people that you meet, when you're walking down the street, they're the people that you meet each day The Lyme neighborhood extends worldwide. I work with doctors across…

Acceptance Does Not Equal Failure

One of the hardest things for me to overcome isn't the acceptance that I am sick. I wake up every morning knowing I'm sick - the pain reminds me, the fatigue and weakness remind me, the numbness and tingling and nausea remind me. Yes, I accept that I'm sick. I put my feet on the…

Don’t Give Up

I want to inspire people. I want someone to say because of me, they didn't give up. Usually when I write, it's just as much for me as it is for anyone else. Today is no exception. I wouldn't say the last few days have been great, but they've been better than many. So you…