Or rather, back in Kansas again! I am at Biologix in Wichita for another week of treatment. There are a lot of mixed emotions this trip. For one, the center is moving to Tennessee and this is the last week they'll be open in Wichita. This is a good move for the center as well…
Who Are You? Chronic sickness steals so much of what we do that we can feel like we lose who we are. Who am I if I can’t work? Who am I if I can’t clean my house or drive myself to the store? Who am I if I can’t hike or kayak or play…
Cast away is one of my favorite movies and even though there is an obvious connection to sickness leaving me stranded on an island in the middle of nowhere with power over nothing, it still moves me to stay alive, keep breathing, against all hope and logic. I don't want to die - but sometimes…
I was reminded yesterday (by a friend who in the moment seemed to know me better than I knew myself) that I am an adventurer. Even being sick, my heart longs for seeking out new places and experiences. I love to hike and kayak and wander down trails. Adventure is ingrained in my soul -…
What Do You Need? I bet that's something you've never thought to ask yourself. And I bet not many other people have asked you that either. So don't you think it's about time someone did? HSPs try so hard to conform to the world - wanting to be like everyone else, thinking if you're not,…
Earlier this year, I was given a gift that included offsetting some of the cost of my treatment. I will forever be thankful for having a piece of the financial burden lifted - but the bigger gift, the more effective gift, was simply knowing that someone saw my pain, saw my suffering, and wanted to…
Some days, I wake up a little slow and weak but with coffee and a little time, pain starts to decrease and I start to feel a little energy. It's exciting to think I may be able to accomplish even simple tasks like making breakfast and doing dishes or laundry. Defeat: prevent (someone) from achieving…
I first started this blog partly because I couldn't find other Lyme stories that really talked about the bad times. I get it, we want to be seen as pillars of strength and we fight to focus on the positive things in life, helping others cling to hope. That's noble, but I want to know…
We all have those people who cross the line from time to time and treat us with less love and respect than they should. Sometimes, that line crossing turns into a pattern of bad behavior that is unhealthy for both parties. When this happens, it's imperative to find ways to set boundaries. Setting boundaries is…
I drove through the town of Paradise the other day - the town that was ravished last November by a vicious fire. It was intensely humbling to see the destruction and devastation. Entire streets had been completely leveled - homes gone, debris cleared leaving only dirt and driveways.My friends home - gone Some streets would…
PhilippiJoy 