After stopping IV for a month, the pain became too difficult so we resumed 1 of the antibiotics. It has helped some, but I am still struggling with head, neck and back pain – among other miscellaneous issues.

Symptoms currently are more indicative of bartonella and babesia so those become the primary treatment focus.

John Hopkins recently did a study on using multiple IV abx to treat various tickborn diseases. It is showing some promise. So we are adding a new med to the current IV treatment and will add a third in a month or so.

Continuing the mold and lead treatments as well. 

I believe I am improving. I am certain of it. But it is a long, hard road and the end is not yet in sight. 

I am trying to take one day at a time and focusing on the things I am able to do, even if it is something as small as just eating a sandwich. It’s hard to stay positive but I refuse to stay down.  I often remind myself, “it’s ok to have a pity party, just don’t unpack and live there.”

God is still God.

God is still good.

To Him be the glory.

11 thoughts on “Update: June 28 2016”

  1. wondering if your insurance covers the iv? I am currently only using natural treatments right now. we may introduce antibiotics when my immune system restores. hope you heal quickly.

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    1. The prescription insurance is covering the IV. For a long time, I went through Dollar Drug in Santa Rosa, ca. I paid up front and then sent claims into the ins. They break it down individually so it can be paid as medication and not as a treatment.

      I just started using Premier. They do all the billing for me up front. They checked with both major medical and prescription insurance and found that I have met my out of pocket on Rx so it is covered 100%.

      I hate telling people that because I know so many people who haven’t been able to get anything covered and I feel blessed beyond measure that I am getting such amazing treatment.

      I’m glad you are preparing your body for Abx. It was definitely hard on my system – we built up by doing oral first, then injection, and now I have been on IV a little over a year. I do a lot of detox and my doc makes sure I take supplements that help my body handle whatever treatment in on at the time. I feel like I handle the treatments better now…I used to get massive pain during infusions, still get pain but not as bad and I feel better on them than off.

      It’s a long process and it’s hard to be patient.

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      1. do not feel bad! that’s great! I have no idea at this point if insurance will cover anything. I’m not there yet. everyones Lyme treatment is different and not much is covered. I am really happy to hear that it is covered for you and was thinking about down the road if what I am doing currently fails. thank you!

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    1. It’s so slow and sometimes I feel like I am going backwards. But if I look at where I was 2 years ago – basically bedridden, constantly in the ER – there is definite improvement. Not completely convinced the meds aren’t just masking the symptoms. But staying hopeful and pushing forward! All we can do.

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