I suffered sickness and pain for many years without a diagnosis. I saw a multitude of doctors – most of whom dismissed me as a hypochondriac when I started to list the multitude of symptoms. They would say things like:

  • “Imagine yourself feeling better, and you will”
  • “Let’s work one symptom at a time – what’s your worst symptoms today”

I had been bedridden for several months when one doctor who stated my bloodwork indicated lupus and referred me to a rheumatologist. I had more bloodwork done before that appointment and the doctor had the results on the first visit.

She immediately stated that my labs were normal and I didn’t have lupus. I began to tear up – which made the doctor angry. “Why would you be upset that you don’t have a disease? This is a good thing!”

Ultimately she dismissed me with the recommendation to go to Macy’s and get a proper bra fitting. Yes, seriously, that was her remedy for my multitude of symptoms.

Nobody wants to be sick. Nobody wants to be diagnosed with a major illness. But when you are sick, you want to know why so you can get proper treatment.

I rejoiced when I finally, after 8 years, got a diagnosis – Lyme disease. What a relief! I can put a name to my sickness – I can research – I can take proper meds and follow protocols to help me get better.

Yes it’s a long road. Yes it’s hard. And it’s come with a long list of additional diagnosis’ which is overwhelming at times – but I have a name for my sickness! And that’s so important.

If you are stuck with doctors who don’t know how to help you – consider seeing a functional medicine doctor. These medical detectives think outside the box and look at all the symptoms together, your body as a whole.

There is hope. There is a name for what you’re going through.

Don’t give up.

2 thoughts on “What’s In A Name??

  1. Shawn, can you recommend a functional medicine doctor? I am desperate for some kind of relief – this current pain stint I’m in is ruining me – I’m scared and don’t know what to do. My husband and I are low income, due to my not being able to work, and I don’t have the money to see specialists – but, something’s got to give here 😦

    Like

    1. Hi Tracy – I’m feel your frustration and know your pain. Such a nightmare!

      I see a doctor at Hill Park Medical Center in Santa Rosa. They are reasonable and you can do phone visits – you just have to go in once a year.

      My pain doctor is Dr Date at Remedy Medical in San Mateo. She has me on butans patches which helps overall and lyrica for peripheral neuropathy – but I’ve also started low dose naltrexone, which has been a really really good addition to lowering my pain.

      I take Benadryl and melatonin in slightly higher than normal doses to help with breakthrough pain. Right now I’m taking them several times daily – which sucks because it also makes me a little tired, but I’m so fatigued it doesn’t matter. Lol

      Sleep is huge and plays big into pain too. The ldn helps with sleep some – but I also take “gather vitality” from Kan nutritional and “Sleep Factor” from Biogenesis.

      Pick your battles – start with the Benadryl and melatonin for now and look into hill park…they’re great people.

      And Tracy – be kind to yourself. You are sick. Let yourself rest, sleep as much as your body will let you.

      Like

Leave a reply to Tracy Walters Cancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.