• Lyme Disease Awareness Month

    It’s been a while since I’ve posted – honestly, I just haven’t been sure what to say. Not much has changed (in the fact that I’m not much better, not much worse) and yet there has been a lot going on – I had a blood clot and had to have my picc line removed, Read more

  • The Part of Me You Never See

    I haven’t kept up on my posts here – largely because life has been so overwhelming that my brain hasn’t been able to function well enough to do more than very basic tasks. Most people only see me when I am out of the house and have showered and brushed my hair and maybe put Read more

  • Christmas

    Christmas is my favorite time of year. I love the colors and lights and the feeling of magic and joy that come with beautiful decorations and music filling my home.   It can also be a reminder of all the things I can’t do and all the ways I cant share those feelings with my Read more

  • New Amsterdam

    The most recent episode of New Amsterdam had a patient in the ER with headaches. The doctor spent hours with this woman and finally diagnosed her with Lyme disease.  The head of the ER was upset the doctor spent so much time with one patient – she told him there are over 300,000 cases a Read more

  • Good days I’m ok. Bad days I’m ok.

    Living with pain every day wears you down. Over time, it can break your spirit and make life unbearable.  I spoke with a woman the other day who shared with me that she sometimes considers suicide. She suffers so much and is not getting a lot of help from her doctors. She is trying to Read more

  • In our weakness, He is strong

    I am laying here in bed, having completed 2 IV treatments this morning, feeling sick to my stomach and weak as can be.  Recent events have caused a burden of stress that is wreaking havoc on my system.  I’ve been in bed for 3 weeks.  Exhausted from the pain that cripples me day and night.  Read more