• Daily Therapies In A Nutshell

    In addition to daily doctor visits, you spend 5-6 hours in various therapies each day. These are tailored by your doctor to the needs of your body. Let me take a moment here to say the gals who coordinate these therapies are essentially a therapy in themselves with their smiles and laughter, and the love Read more

  • Biologix Update – June 2019

    I’ve been back in Kansas for another 5 days of treatment. It’s once again been such an encouraging experience – leaving me filled with hope. I was in a lot of pain when I got here and feeling a little discouraged, but my pain level is down today and I am leaving with new tools Read more

  • We Are Not Normal – and that’s ok

    Every aspect of the chronically ill life is vastly different from the healthy life. And with those differences comes a feeling that we are not “normal”. And we’re not! And that’s ok. It’s what we do with the minutes of our abnormal life that counts. Every night, every person on the planet lays down, closes Read more

  • Head Above Water

    Some days my sickness is only as deep as my knees. I may have a mild headache, a little joint pain, and maybe some nausea…but I’m able to get out of the house, go to the store, cook a meal, spend time with my family and maybe even do a little laundry. This is a Read more

  • I Am One

    I’ve lost several friends in recent years to cancer – and I’ve seen friends battle and fight and suffer that cruel disease. I have nothing but respect for anyone who has been in that trench. I do not discount the terror that comes with a cancer diagnosis. It is horrible, it is painful, it is Read more

  • HOPE: LLMDs and other amazing people

    You have read my rants about doctors in the general medical industry and my frustration with their lack of compassion and understanding. If you weed through my posts, you will also find glimpses of interactions with doctors who genuinely care and who truly listen. When I first started seeing doctors at Stanford in 2013, I Read more