• Fight Like Hell!

    Thoracic Outlet Symdrome (TOS) is a group of conditions that essentially affect the nerves or veins flowing through the upper thoracic down into the arms and hands. I know I shouldn’t be surprised when pain hits me, especially any pain stemming from the spine – nonetheless, it caught me off guard today. Ironically, I was Read more

  • Thriving Through a Crash

    It’s not enough to just survive. One of the most frustrating things about this illness is not knowing what triggers a crash. It’s all guesswork! I started new meds, I visited a place that I believe had mold, the weather changes, moon changes, dormant disease popping up – my body reacts to all of this. Read more

  • 7 Year Blog Journey

    Today marks 7 years since I began sharing my story here on WordPress. My First Post Here – Why I Started a Blog I haven’t been consistent and I’m sure sometimes my posts didn’t make sense to anyone but me. However I pray that at least some of what I’ve written has resonated in some Read more

  • Overcomer

    I wake up by 5am every day…no matter what time I go to sleep or how much I wake up. 5-7 am – that’s it. That’s all I have. Every day. 2 hours, 3 max. I get so discouraged when I start to feel the warmth of illness pour over my body. My feet begin Read more

  • What’s In A Name??

    I suffered sickness and pain for many years without a diagnosis. I saw a multitude of doctors – most of whom dismissed me as a hypochondriac when I started to list the multitude of symptoms. They would say things like: “Imagine yourself feeling better, and you will” “Let’s work one symptom at a time – Read more

  • The Joy of Life

    I hate being sick. Hate it. It’s impossibly hard most days. I cry. I get mad. I feel hopeless at times. It’s ok to have a pity party just don’t unpack and live there! But I choose how to live with this sickness. I choose love. I choose joy. Yes – it’s a choice. Every Read more