• How are you?

    How are you? I have become resentful of this question. People who live with extreme chronic pain just don’t have a simple answer to this question. I have a lot of bad nights, but last night was absolutely miserable. I took a pain pill before bed but woke up in the middle of the night Read more

  • UNDIAGNOSABLE

    Lately I’ve been talking to a lot of people who are sick; I think they don’t relate because I already have a diagnosis. I went 8 years undiagnosable (no – it’s not a word, but I like it and for the sake of today’s discussion, I’m gonna claim it). Below is a chart of what Read more

  • Lyme Disease and the Pain Scale

    Note from the author: This post is referenced every day by people all around the world. Would you do me a favor, leave me a comment and let me know how you found this post and if it helped you? Thanks for being here! Lyme Disease and the Pain Scale If you’ve been to the Read more

  • Life Is Good

    I saw a friend today who is always so perky and happy – you can’t help but smile when she is in the room and I did just that. She asked me how I was doing, but before I could answer, she said something along the lines of, “You look like you’re doing good! Are Read more

  • Never Give Up

    This is an awesome story about a man working to raise awareness by crossing the country from sea to sea. He arrives in Pacifica this Saturday, Oct 3. BE sure to watch the video of him speaking to a group of Lymies here in Cali…he is an encouragement to NEVER GIVE UP. https://www.lymedisease.org/touched-by-lyme-cyclist-to-reach-pacific-october-3/ Read more

  • It’s Not Over Yet

    It’s Not Over Yet (For King and Country) This song is for every Lyme warrior. We have no official prognosis. We don’t know when, or if, we will ever be well. We simply wake up every day and fight. And we keep fighting – cuz it’s not over yet. Read more