Haven’t tried yet - coming soon Ingredients: 2 tbsp chia seeds + 6 tbsp water (chia "egg") 1/2 cup unsweetened cocoa powder 1/2 cup almond flour or ground oats 1/4 cup maple syrup or honey 1/4 cup Greek yogurt or mashed banana 2 large eggs (or substituwith flax eggs for eggless) 1/4 cup melted coconut…
Thank You for Caring
I receive recommendations all the time for products, therapies and protocols in the hopes something may help me. I very rarely try those recommendations - and I want people to understand why. I used to think doctors had the answers. They didn’t. Then I thought some alternative program would be the thing. Those did not…
Oat Bran Muffins
Night Before: Add to bowl 2 cups oat bran 1/3 cup almond flower 2/3 cup cassava flour Pour “buttermilk” over bran/flour mix and stir. Buttermilk: 1 1/2 tsp apple cider vinegar Coconut milk to make 1 1/2 cups total Refrigerate overnight. This breaks down the bran so it digests better. In the morning: Turn oven…
Berry Cobbler
Filling 4 cups berries (I like raspberries, blackberries, blueberries) 1/4 cup (59.15 g) allulose 1/2 tsp psyllium husk 1 tbsp tapioca flour 1 tsp ground flax (optional) Topping 3/4 cup (84 g) slmond flour 1/2 cup (91 g) coconut sugar 2 tbsp coconut flour 1 tsp baking powder 1/4 tsp (0.25 tsp) salt 1/4 cup (56.75 g) melted butter 1 large egg 2 tbsp heavy whipping cream (or non dairy alternative) If using frozen berries, bake them at 350° until they are…
Get Off the Mat
I’ve been reading Jeremy Renner’s book “My Next Breath”. I love his spirit and drive. I love his love for his family and friends. I love that he’s a fighter. BUT… I started to feel stuck in my own head because there’s a difference between what he went through and what we (lymies) go through.…
Struggling to Get Through the Day
Winter is always hard. Christmas is over - it’s New Years Eve - and I am still expecting myself to do more than I am realistically able. My low back is flaring up. I have multiple structural issues which become a serious problem when there is inflammation. Every movement hurts. Coughing hurts. Laughing hurts. Sometimes…
Pain
PAIN is one of the hardest symptoms to explain - mainly because it’s not a single symptom. Pain happens in lots of places for lots of reasons and with differing degrees of severity and duration. When you have an acute injury to a specific body part, doctors ask you to describe your pain (achy, dull,…
Update: Sept 2025
To be honest, it’s been a struggle to write because it’s hard to come up with words for where I am, where my family is. If I look back over the years since I first became disabled on July 10, 2013, I see huge progress. Back then I was bed bound most of every day,…
Choosing Joy
Someone told me that it seems like our life is really great. It stopped me in my tracks. No, our life is not really great. It’s really hard. It’s really stressful. It is often really lonely and really painful. My husband and I work really hard to choose joy every day. We seek adventure (because…
THIS is Lyme+
Last night, my husband and I celebrated our 13th anniversary in Monterey. We walked down Cannery Row, shot lasers at treasure chests in an underground cavern, and had dinner at a fabulously quaint vegetarian and gluten free restaurant (a rare find) where two musicians played guitar and sang as if they were having a jam…