I saw this post this morning and it sure hit home! Digging my way through sickness has been so hard at times that I’ve wanted to just stop fighting. But what does that mean? Do I just lay in bed and whither away? Would that be easier? No - I’d still be sick! I’d still…
I have days where I think “this is it - this is as good as it’s gonna get”. Usually this thought creeps in when doctors don’t know what to do and they don’t have anything new for me to try. Man that can be a depressing thought. This. Is. It. And then suddenly, something comes…
Co-conditions, accompanying illness, whatever you call them - sometimes the side conditions have more of an impact than the primary conditions. We call it Lyme disease - but that’s not my problem. I sometimes wonder how much the bacteria that causes Lyme is even a factor. My biggest problems right now are spine instability and…
Josh Blue has cerebral palsy and is one of the funniest comedians I’ve ever seen. He was on AGT this year and during the finale, he shared that he is in phenomenal pain. You’re not going to get better by letting it beat you.Josh Blue Oh how I relate to this so much!!! There are…
Adding to the list of diagnosis’ I’ve racked up - CCI is a likely missing piece of the puzzle. Symptoms can include: Head tilting Intracranial hypertension – pressure headachesBrian fog, concentration difficulties, memory issuesDysautonomia Digestive problemsSwallowing difficultiesHiccupsTMJBurning mouth and facial painStrange skin sensationsExcessive sweating, Sweaty hands, and palmsItching skinCardiovascular type disordersVision problemsTinnitus & ear problemsSinus…
This is my Lyme doctor. I am so grateful to him for his work in this specialized field and for the compassionate care he and his team have given me over the last 7 years. The Big Picture Lyme disease: is the most common vector borne disease in America the most common tick disease in…
I want to tell everyone what I know about Lyme and other tick diseases. There’s a very fine line between being transparent and being overwhelming. Human frailty - sickness, death, even emotions - can be hard to talk about. It requires vulnerability. It taken me 52 years to learn that being vulnerable isn’t a bad…
It’s ridiculous that a quote in a somewhat off-color (and awkwardly romantic) movie can be the very thing I need to hear. Forget about who you thought you were and just accept who you are.Maya, Jersey Girl I talk a lot about who I used to be...how I used to live...what I used to do.…
This is the theme of the movie about Seabiscuit. A broken down owner, trainer, jockey and horse all come together to created the perfect team. I tell ya, it’s been a hard thing to find my balance with this thing called Lyme. It’s hard to figure out how to live with this mess of a…
PhilippiJoy 