The Level of Exhaustion

Being sick is exhausting. You can’t understand that statement unless you’ve been there yourself. I am exhausted. I’m sick of being sick. The pain right now is so high I wake up crying - I can’t walk, I can’t turn over, I can’t breathe without cringing. “There comes a point when the desire to rest…

Babesia

One of the many Lyme co-infections and co-conditions is babesia. Most lymies I’ve met on the west coast also have babesia and bartonella. Some of the other co’s include ehrlichiosis, anaplasmosis, and mast cell activations syndrome. Today, Lymedisease.org published an article showing that North America is ground zero for babesia. Babesia Ground Zero Honestly, Lyme…

Wits End

To be at the end of ones emotional or mental limits. Every Lyme patient feels this way often - sometimes every day. It’s nearly impossible to not feel frustrated, sad, even hopeless. The trick is to find your way back to feeling hopeful and encouraged. I woke up this morning short of breath, heart rate…

The Measure of a Person

“Everyone fails at who they’re supposed to be...the measure of a person is how well they succeed at who they are.” Frigga to Thor I am sick. It isn’t who I am but it does affect what I can do...and that affects who I am. Right now I can’t stand up for 5 minutes. Literally…

Dysautonomia

Shortness of breath - high heart rate - low bp - dizziness - weakness - nausea - all caused by an autonomic nervous system that just doesn’t work right. The Autonomic Nervous System (ANS) connects organs to the brain stem or spinal chord - mediating heart rate, blood pressure, respiratory rate, pupillary response, metabolism, digestion,…

The Joy of Life

I hate being sick. Hate it. It’s impossibly hard most days. I cry. I get mad. I feel hopeless at times. It’s ok to have a pity party just don’t unpack and live there! But I choose how to live with this sickness. I choose love. I choose joy. Yes - it’s a choice. Every…

What’s In A Name??

I suffered sickness and pain for many years without a diagnosis. I saw a multitude of doctors - most of whom dismissed me as a hypochondriac when I started to list the multitude of symptoms. They would say things like: “Imagine yourself feeling better, and you will”“Let’s work one symptom at a time - what’s…

Overcomer

I wake up by 5am every day...no matter what time I go to sleep or how much I wake up. 5-7 am - that’s it. That’s all I have. Every day. 2 hours, 3 max. I get so discouraged when I start to feel the warmth of illness pour over my body. My feet begin…