Living with pain every day wears you down. Over time, it can break your spirit and make life unbearable. I spoke with a woman the other day who shared with me that she sometimes considers suicide. She suffers so much and is not getting a lot of help from her doctors. She is trying to…
New Amsterdam
The most recent episode of New Amsterdam had a patient in the ER with headaches. The doctor spent hours with this woman and finally diagnosed her with Lyme disease. The head of the ER was upset the doctor spent so much time with one patient - she told him there are over 300,000 cases a…
Christmas
Christmas is my favorite time of year. I love the colors and lights and the feeling of magic and joy that come with beautiful decorations and music filling my home. It can also be a reminder of all the things I can’t do and all the ways I cant share those feelings with my…
The Part of Me You Never See
I haven't kept up on my posts here - largely because life has been so overwhelming that my brain hasn't been able to function well enough to do more than very basic tasks. Most people only see me when I am out of the house and have showered and brushed my hair and maybe put…
Lyme Disease Awareness Month
It's been a while since I've posted - honestly, I just haven't been sure what to say. Not much has changed (in the fact that I'm not much better, not much worse) and yet there has been a lot going on - I had a blood clot and had to have my picc line removed,…
Mental Barriers (Doorways)
Have you ever walked through a doorway and forgotten why you went in there? Isn’t it frustrating? Doorways are essentially dividers separating two rooms. While you are in a room, your mind is associating everything in that room (including your thoughts) into specific spaces in your brain. When you cross through a door, your mind begins…
Terrible, Horrible, No-Good Very Bad Days
The other night, my family and I watched the movie "Alexander and the Terrible, Horrible, No-good, Very Bad Day". It's a story of a boy who can't seem to catch a break. Everything he does, everywhere he goes, things just don't turn out for the good. His family on the other hand, seem to…
Anniversaries
Every year, certain dates stand out as being particularly special, my kids birthdays, our anniversary, the day my husband asked me to marry him, Christmas - all special days that bring happy memories to the forefront of my mind. July 10, while not necessarily a happy day, was a pivotal day in my history. I…
Hope is a tease…
"Hope is a tease designed to prevent us from accepting reality." It's a dangerous thing to give up hope altogether. Without hope, what reason do we have to live? But somehow we must also be careful to not have so much hope that we lose sight of the reality in which we live. As the…
Worth Fighting For
It seem there has been a number of Lyme related deaths recently, mostly suicide. My heart hurts to know that so many people are in such despair that they choose death. The trailer below spoke to my heart - particularly the last words: Disappearing From Society Trailer
PhilippiJoy 