Last year, I had 3 good weeks in December. We don't know why. No new meds. No new routines. Just 3 good weeks of shopping, decorating, and enjoying my family. On December 25, things changed. We had a severe flu running through the house and I caught it. We all hate the flu and this…
Rules & Limits
Those of us with chronic Lyme & other tick borne diseases have a lot of cellular damage and nutritional deficiencies. There are a number of rules important for us to follow so that our bodies are able to become nourished and heal. Most of these rules are pretty clear cut - no alcohol, no smoking, diet…
When Life Gives You Lyme…
My artist daughter was working on a drawing when she accidentally spilled a little coffee on the paper. She quickly got up and grabbed a tissue to sop up the wetness. I felt bad for her, until she looked at the picture and simply said "texture". It's the old lemonade adage lived out in art.…
Enjoy The Moment
I am a very active person. I love to hike and kayak - and I love doing all things crazy with my husband and kids. Of course, life has changed over the years. 10 years ago, when I was first hit by this disease, I had to learn manage my energy and pain so that…
Why Do I Blog?
My cousin friend shared her heart with me last night about the difficulties of reading my posts because it's hard to read, to know, what I live thru. Her words of love and compassion hit me so deeply and made me think about the people who read my blog. I've never given any thought to…
Update: my oh my
I am almost done with my 3rd week of this intense protocol. 3 antibiotics via IV (rocephin, cubicin, minocycline) 5-7 hours a day/5 days a week. It's been rough. The first few days of each week are pretty intense. Lots of pain, numbness, digestive trauma, muscle weakness, drowsiness, dizziness - and just a general…
Bitterness
Today's motto:"You either get better or you get bitter." (Photo Shares by Purple Clover) "Indeed it was for my own peace That I had great bitterness; But You have lovingly delivered my soul from the pit of corruption, For You have cast all my sins behind Your back." Isaiah 38:17 There are many days that…
Lyme is Different for Each Individual
Disclaimer: This post is not intended to make anyone feel bad or to criticize anyone for saying things about my illness. My hope is to educate those who done have Lyme a little about the differences in Lyme patients. If I offend you, I'm sorry. And this is not directed at anyone specifically - again,…
It’s OK to Hurt
It's ok to hurt. It's ok to be sick. My husband says these things often. Not because he is ok with me being in pain or being sick - he is reminding me that what I am feeling is real. Even as I lie here this morning with severe muscle pain and feeling like I…
Update: July 22 2016
At my last in office appt my doctor told us about a recent study at John Hopkins which combines multiple IV abx to attack various forms of Lyme. Doxy is a key one but I was on that last year and I did not tolerate it so that's out. I've been on rocephin for a…
PhilippiJoy 