I am almost done with my 3rd week of this intense protocol. 3 antibiotics via IV (rocephin, cubicin, minocycline) 5-7 hours a day/5 days a week. It's been rough. The first few days of each week are pretty intense. Lots of pain, numbness, digestive trauma, muscle weakness, drowsiness, dizziness - and just a general…
Bitterness
Today's motto:"You either get better or you get bitter." (Photo Shares by Purple Clover) "Indeed it was for my own peace That I had great bitterness; But You have lovingly delivered my soul from the pit of corruption, For You have cast all my sins behind Your back." Isaiah 38:17 There are many days that…
Lyme is Different for Each Individual
Disclaimer: This post is not intended to make anyone feel bad or to criticize anyone for saying things about my illness. My hope is to educate those who done have Lyme a little about the differences in Lyme patients. If I offend you, I'm sorry. And this is not directed at anyone specifically - again,…
It’s OK to Hurt
It's ok to hurt. It's ok to be sick. My husband says these things often. Not because he is ok with me being in pain or being sick - he is reminding me that what I am feeling is real. Even as I lie here this morning with severe muscle pain and feeling like I…
Update: July 22 2016
At my last in office appt my doctor told us about a recent study at John Hopkins which combines multiple IV abx to attack various forms of Lyme. Doxy is a key one but I was on that last year and I did not tolerate it so that's out. I've been on rocephin for a…
Daryl Hall & Dr Horowitz Interview
Daryl Hall & Dr Horowitz Interview on Lyme Disease Even tho Daryl was sick only about a year before being diagnosed and starting treatment, he had a long road to recovery and continues to have flair ups. Like I've said many times, every case of Lyme is different. I pray to be well one day…
The Woman I’ve Become
My life has not taken the path society deems "normal". I did a lot of stupid things when I was young - more so than most. I became a mom at 21 without a partner. When my little girl came along I grew up and got serious about life. I worked...a lot...and hard. I entered…
Hold Your Peace
And Moses said to the people, "Do not be afraid. Stand still, and see the salvation of the LORD, which He will accomplish for you today. For the Egyptians whom you see today, you shall see again no more forever. "The LORD will fight for you, and you shall hold your peace." Exodus 14-13-14 ________________________…
Lyme Interview
If you are new to Lyme or just want a better understanding of the Lyme diagnosis and treatment challenges, this is a great interview with LLMD Dr. Steven Phillips and singer/songwriter Dana Parish. Dr. Phillips explains what Lyme is and the issues in the medical community and Dana discusses the challenges patients have with finding…
Update: June 28 2016
After stopping IV for a month, the pain became too difficult so we resumed 1 of the antibiotics. It has helped some, but I am still struggling with head, neck and back pain - among other miscellaneous issues. Symptoms currently are more indicative of bartonella and babesia so those become the primary treatment focus. John…
PhilippiJoy 