I am a very active person. I love to hike and kayak - and I love doing all things crazy with my husband and kids. Of course, life has changed over the years. 10 years ago, when I was first hit by this disease, I had to learn manage my energy and pain so that…
Why Do I Blog?
My cousin friend shared her heart with me last night about the difficulties of reading my posts because it's hard to read, to know, what I live thru. Her words of love and compassion hit me so deeply and made me think about the people who read my blog. I've never given any thought to…
Update: my oh my
I am almost done with my 3rd week of this intense protocol. 3 antibiotics via IV (rocephin, cubicin, minocycline) 5-7 hours a day/5 days a week. It's been rough. The first few days of each week are pretty intense. Lots of pain, numbness, digestive trauma, muscle weakness, drowsiness, dizziness - and just a general…
Bitterness
Today's motto:"You either get better or you get bitter." (Photo Shares by Purple Clover) "Indeed it was for my own peace That I had great bitterness; But You have lovingly delivered my soul from the pit of corruption, For You have cast all my sins behind Your back." Isaiah 38:17 There are many days that…
Lyme is Different for Each Individual
Disclaimer: This post is not intended to make anyone feel bad or to criticize anyone for saying things about my illness. My hope is to educate those who done have Lyme a little about the differences in Lyme patients. If I offend you, I'm sorry. And this is not directed at anyone specifically - again,…
It’s OK to Hurt
It's ok to hurt. It's ok to be sick. My husband says these things often. Not because he is ok with me being in pain or being sick - he is reminding me that what I am feeling is real. Even as I lie here this morning with severe muscle pain and feeling like I…
Update: July 22 2016
At my last in office appt my doctor told us about a recent study at John Hopkins which combines multiple IV abx to attack various forms of Lyme. Doxy is a key one but I was on that last year and I did not tolerate it so that's out. I've been on rocephin for a…
Daryl Hall & Dr Horowitz Interview
Daryl Hall & Dr Horowitz Interview on Lyme Disease Even tho Daryl was sick only about a year before being diagnosed and starting treatment, he had a long road to recovery and continues to have flair ups. Like I've said many times, every case of Lyme is different. I pray to be well one day…
The Woman I’ve Become
My life has not taken the path society deems "normal". I did a lot of stupid things when I was young - more so than most. I became a mom at 21 without a partner. When my little girl came along I grew up and got serious about life. I worked...a lot...and hard. I entered…
Hold Your Peace
And Moses said to the people, "Do not be afraid. Stand still, and see the salvation of the LORD, which He will accomplish for you today. For the Egyptians whom you see today, you shall see again no more forever. "The LORD will fight for you, and you shall hold your peace." Exodus 14-13-14 ________________________…
PhilippiJoy 