My artist daughter was working on a drawing when she accidentally spilled a little coffee on the paper. She quickly got up and grabbed a tissue to sop up the wetness. I felt bad for her, until she looked at the picture and simply said "texture". It's the old lemonade adage lived out in art.…
Enjoy The Moment
I am a very active person. I love to hike and kayak - and I love doing all things crazy with my husband and kids. Of course, life has changed over the years. 10 years ago, when I was first hit by this disease, I had to learn manage my energy and pain so that…
Why Do I Blog?
My cousin friend shared her heart with me last night about the difficulties of reading my posts because it's hard to read, to know, what I live thru. Her words of love and compassion hit me so deeply and made me think about the people who read my blog. I've never given any thought to…
Update: my oh my
I am almost done with my 3rd week of this intense protocol. 3 antibiotics via IV (rocephin, cubicin, minocycline) 5-7 hours a day/5 days a week. It's been rough. The first few days of each week are pretty intense. Lots of pain, numbness, digestive trauma, muscle weakness, drowsiness, dizziness - and just a general…
Bitterness
Today's motto:"You either get better or you get bitter." (Photo Shares by Purple Clover) "Indeed it was for my own peace That I had great bitterness; But You have lovingly delivered my soul from the pit of corruption, For You have cast all my sins behind Your back." Isaiah 38:17 There are many days that…
Lyme is Different for Each Individual
Disclaimer: This post is not intended to make anyone feel bad or to criticize anyone for saying things about my illness. My hope is to educate those who done have Lyme a little about the differences in Lyme patients. If I offend you, I'm sorry. And this is not directed at anyone specifically - again,…
It’s OK to Hurt
It's ok to hurt. It's ok to be sick. My husband says these things often. Not because he is ok with me being in pain or being sick - he is reminding me that what I am feeling is real. Even as I lie here this morning with severe muscle pain and feeling like I…
Update: July 22 2016
At my last in office appt my doctor told us about a recent study at John Hopkins which combines multiple IV abx to attack various forms of Lyme. Doxy is a key one but I was on that last year and I did not tolerate it so that's out. I've been on rocephin for a…
Daryl Hall & Dr Horowitz Interview
Daryl Hall & Dr Horowitz Interview on Lyme Disease Even tho Daryl was sick only about a year before being diagnosed and starting treatment, he had a long road to recovery and continues to have flair ups. Like I've said many times, every case of Lyme is different. I pray to be well one day…
The Woman I’ve Become
My life has not taken the path society deems "normal". I did a lot of stupid things when I was young - more so than most. I became a mom at 21 without a partner. When my little girl came along I grew up and got serious about life. I worked...a lot...and hard. I entered…
PhilippiJoy 