Not all Lyme disease is created equal. And not all Lyme disease is only Lyme disease. There are those who get bitten by a tick, get a bullseye rash, get a fever, see a doctor, get a test that comes back positive, take 14 days of antibiotics and are cured. Most doctors outside of Connecticut…
Around Every Corner
The last couple weeks have been good. I'm no where near 100%... but I've been out of bed every day for more hours than not. We want to hope that I've turned the corner and am on a path of healing, but we are keeping an open eye and praying that there is not a…
Prognosis?
I am asked every day about my prognosis. Here’s the deal, chronic Lyme disease doesn’t have a prognosis. We literally take on this illness one day at a time. When I discuss my progress with my doctor, I am constantly reminded that I have been sick a long time (9 years) and that it’s going…
It’s Not Over Yet
It's Not Over Yet (For King and Country) This song is for every Lyme warrior. We have no official prognosis. We don't know when, or if, we will ever be well. We simply wake up every day and fight. And we keep fighting - cuz it's not over yet.
Never Give Up
This is an awesome story about a man working to raise awareness by crossing the country from sea to sea. He arrives in Pacifica this Saturday, Oct 3. BE sure to watch the video of him speaking to a group of Lymies here in Cali...he is an encouragement to NEVER GIVE UP. https://www.lymedisease.org/touched-by-lyme-cyclist-to-reach-pacific-october-3/
Life Is Good
I saw a friend today who is always so perky and happy – you can’t help but smile when she is in the room and I did just that. She asked me how I was doing, but before I could answer, she said something along the lines of, “You look like you’re doing good! Are…
Lyme Disease and the Pain Scale
Note from the author: This post is referenced every day by people all around the world. Would you do me a favor, leave me a comment and let me know how you found this post and if it helped you? Thanks for being here! Lyme Disease and the Pain Scale If you’ve been to the…
UNDIAGNOSABLE
Lately I’ve been talking to a lot of people who are sick; I think they don’t relate because I already have a diagnosis. I went 8 years undiagnosable (no – it’s not a word, but I like it and for the sake of today’s discussion, I’m gonna claim it). Below is a chart of what…
How are you?
How are you? I have become resentful of this question. People who live with extreme chronic pain just don’t have a simple answer to this question. I have a lot of bad nights, but last night was absolutely miserable. I took a pain pill before bed but woke up in the middle of the night…
Communicating With A Lymie – Do’s and Don’ts
Disclaimer: I do a disclaimer when I am about to say things that may come across the wrong way. This is not directed at anyone specifically – it’s really just general thoughts I’ve had over the last few years and now see happening to others as well. I am hoping that what I write here…
PhilippiJoy 