Living with any chronic illness can sometimes seem hopeless. You lay in bed in pain, sickness, depression - hour after hour, day after day. It’s only a matter of time before you start to think “this is it - this is life - forever”. You stop seeing a path forward. Especially when so many…
Lyme Disease Awareness Month
It's been a while since I've posted - honestly, I just haven't been sure what to say. Not much has changed (in the fact that I'm not much better, not much worse) and yet there has been a lot going on - I had a blood clot and had to have my picc line removed,…
Mental Barriers (Doorways)
Have you ever walked through a doorway and forgotten why you went in there? Isn’t it frustrating? Doorways are essentially dividers separating two rooms. While you are in a room, your mind is associating everything in that room (including your thoughts) into specific spaces in your brain. When you cross through a door, your mind begins…
Anniversaries
Every year, certain dates stand out as being particularly special, my kids birthdays, our anniversary, the day my husband asked me to marry him, Christmas - all special days that bring happy memories to the forefront of my mind. July 10, while not necessarily a happy day, was a pivotal day in my history. I…
Worth Fighting For
It seem there has been a number of Lyme related deaths recently, mostly suicide. My heart hurts to know that so many people are in such despair that they choose death. The trailer below spoke to my heart - particularly the last words: Disappearing From Society Trailer
Are You Useless?
One of the hardest things about being sick is feeling useless. You don't have to have a chronic illness to understand what I am saying. If you've ever had a bad cold, the flu, a broken leg, a surgery, or any other impairment, then you know what it feels like to be unable to do…
Discouragement
Discourage: to deprive of courage, hope, or confidence; dishearten; dispirit. Most days, I have great hope. I don't have unreachable expectations that I will get well overnight. I don't even have expectations that I will be completely healed one day. But I do have hope that I will continue to heal and improve. Then…
Whack-A-Mole
Whack-a-mole is a fun game of trying to bop moles on the head with a mallet as they pop up from their various little holes. It's not such a fun game when you are playing it with your health. Lyme disease - bartonellosis - babesiosis - and whatever other infections and conditions are floating around…
Goals and Hope
My doctor is one of my biggest cheerleaders (next to my husband and kids). Every time I see him he tells me "don't give up hope". I am learning that there is a huge difference between hope and goals. A goal (in relation to my health) is simply improvement. This past weekend, I was…
Things That Matter
"War has a way of distinguishing between the things that matter and the things that don't." ~Downton Abbey Anyone who has experienced severe illness has been at war. My family and I have fought battle after battle with Lyme+ and I can tell you that we understand that quote very well. Things that used to…
PhilippiJoy 