Mast Cells are important components of the immune system. They are triggered by infections, toxins, and even stress - essentially telling the body to attack the foreign invader. Many Lyme patients develop Mast Cell Activation Syndrome (MCAS), a condition that causes mast cells to become hyperactive, reacting to every stimuli, including foods, smells, even the…
Severe head and neck pain. Nausea, vomiting, abdominal pain. Numbness & tingling. Shortness of breath. All over weakness and flu-like feeling. The last few days I have been detoxing heavy metals. It's one of the many problems associated with Lyme & tick disease. We hold on to toxins, they build up and every now and…
I am given recommendations every day by well meaning people who can't understand why I'm still sick. I appreciate their love and care, but it can feel like they think this complex disease is easier to treat than it actually is. If you haven't been in the trenches (or lengthy discussions) with someone who has…
I sat across the room from the doctor explaining to her that I had been through the ringer trying to find someone, anyone, in the medical industry who would help me manage whatever it was going on with my body. I had been to a lot of doctors over the years and the only thing…
Preface: If you have shared information with me on a cure for Lyme, thank you, I very much appreciate it, but I want you to understand why I (we) don't take your advice. If you know someone who has been sick with Lyme and has "been cured" or is "in remission" - celebrate with them.…
My last post talked about Highly Sensitive People (HSPs) and how their interaction in the world is deep and rich, but also more overwhelming and difficult. In learning to function with HSP, my daughter and I both have been seeking out tools to help calm the world, and the girl. I was sitting in the…
You have read my rants about doctors in the general medical industry and my frustration with their lack of compassion and understanding. If you weed through my posts, you will also find glimpses of interactions with doctors who genuinely care and who truly listen. When I first started seeing doctors at Stanford in 2013, I…
In addition to daily doctor visits, you spend 5-6 hours in various therapies each day. These are tailored by your doctor to the needs of your body. Let me take a moment here to say the gals who coordinate these therapies are essentially a therapy in themselves with their smiles and laughter, and the love…
I post an awful lot about Lyme and tick disease. I sometimes feel like I'm being obnoxious about it and I wonder if others get tired of seeing it. And then I get a text with a picture of a perfect bullseye rash with the question: "Is this Lyme?" I hate that Lyme continues to…
Yesterday completed 2 weeks at Biologix. I am improving so much and am excited to have the opportunity to add a third week to our stay. Pain Prior to coming here, I was on a high dose Butrans pain patch, Lyrica for numbness, and oxy or Norco for breakthrough pain. I am currently off all…
PhilippiJoy 