One of the hardest things about Lyme+ is that no two days are alike. I have days when I feel fairly good. I rode a bike a few days ago. But today I’m laying in bed in a lot of pain and every time I get up I feel dizzy, weak and nauseated. That doesn’t…
Jump Creek Waterfall
Today we took a short walk (very short - 1/4 mile each way) to Jump Creek Waterfall. It tanked me! I slept for hours after and am going back to bed after I finish uploading pics here. I couldn’t have done this 6 months ago. I may not be able to do it tomorrow. So…
Dodge City Kansas
Statues Around Town AT & SF Train Boot Hill Museum
8/27 – IN to IL to MO
Amish parking at Dollar General Illinois surprised us - we actually didn’t realize we would pass through a section of it. Still loving the wide open spaces and all the rivers and lakes. St. Louis A few years ago, on another RV trek, we got off the freeway in St Louis to do a little…
Better Is Relative
I have moments when I get discouraged but for the most part, I am always looking for positive forward motion. When I compare myself to where I’ve been - bed-ridden, wheelchair, dying - I am most definitely better. That doesn’t mean I’m well. I still have a long way to go and while I do…
Rise & Fall – It’s Like A Rollercoaster Sometimes
I had a couple of pretty good months - up and out of bed most days, able to clean and cook and take walks. I’m always so encouraged when there is obvious movement in the right direction. I start to think about how life might change if I can go back to work and do…
July 21 – 10 Years 1015
10 years ago today, we stood in front of family & friends overlooking the river and became husband and wife. Oh how life has changed since then! We have been challenged in ways we could never have considered. Less than a year after our vows, I became bedridden and our journey to find help was…
9 Years of Hope
9 years ago today, I went to the ER with such severe back pain that I couldn’t walk, couldn’t sit, and the 2 rounds of IV pain meds they gave me barely took the edge off. Since that day - I’ve been disabled. I spent the next 9 months begging doctors for answers. I’ve been…
What A Difference A Day Makes
Yesterday was an amazing day. We spent a lot of time in the Word and talking about life and what’s happening in our world. And then we drove to Barefoot Beach, which is in the middle of a nature preserve (watch out for turtles). I’m not saying I was so full of energy I could…
Humidity & Current Symptoms
A few years back, Dave and I spent a week on Kauai. It was huuuuumid! My pain dissipated. We came home and boom - pain high. Every time I’ve been somewhere with humidity, my pain drops - not gone, but bearable. The last several days have been high humidity - and it’s been great. Today…
PhilippiJoy 