Co-conditions, accompanying illness, whatever you call them - sometimes the side conditions have more of an impact than the primary conditions. We call it Lyme disease - but that’s not my problem. I sometimes wonder how much the bacteria that causes Lyme is even a factor. My biggest problems right now are spine instability and…
“You’re Not Going to Get Better by Letting It Beat You”
Josh Blue has cerebral palsy and is one of the funniest comedians I’ve ever seen. He was on AGT this year and during the finale, he shared that he is in phenomenal pain. You’re not going to get better by letting it beat you.Josh Blue Oh how I relate to this so much!!! There are…
Anything Mentionable is Manageable
I want to tell everyone what I know about Lyme and other tick diseases. There’s a very fine line between being transparent and being overwhelming. Human frailty - sickness, death, even emotions - can be hard to talk about. It requires vulnerability. It taken me 52 years to learn that being vulnerable isn’t a bad…
“Accept Who You Are” ~Jersey Girl
It’s ridiculous that a quote in a somewhat off-color (and awkwardly romantic) movie can be the very thing I need to hear. Forget about who you thought you were and just accept who you are.Maya, Jersey Girl I talk a lot about who I used to be...how I used to live...what I used to do.…
“You Don’t Throw A Whole Life Away Just Because It’s a Little Banged Up” ~Seabiscuit’s Trainer
This is the theme of the movie about Seabiscuit. A broken down owner, trainer, jockey and horse all come together to created the perfect team. I tell ya, it’s been a hard thing to find my balance with this thing called Lyme. It’s hard to figure out how to live with this mess of a…
Lyme & Tick Disease in Tehama County
Contrary to what local medical professionals believe, Lyme disease is highly active in Tehama County and California. I was bitten by two ticks during June of 2006. I know to watch for a bullseye rash - which never came. Whew! A few days later, tho, I developed a horrible respiratory infection, followed over the next…
Gettin Real Is Really Hard
I’ve been stuck. It seems like I start a new protocol, I do ok for a month or two, and then I crash (headaches, high pain, high hr, short of breath, cognitive issues like word finding and short term memory, digestive, rashes, etc etc - you name it, I get it. Most of the time…
Wits End
To be at the end of ones emotional or mental limits. Every Lyme patient feels this way often - sometimes every day. It’s nearly impossible to not feel frustrated, sad, even hopeless. The trick is to find your way back to feeling hopeful and encouraged. I woke up this morning short of breath, heart rate…
Dysautonomia
Shortness of breath - high heart rate - low bp - dizziness - weakness - nausea - all caused by an autonomic nervous system that just doesn’t work right. The Autonomic Nervous System (ANS) connects organs to the brain stem or spinal chord - mediating heart rate, blood pressure, respiratory rate, pupillary response, metabolism, digestion,…
Recognizing Lyme Carditis
Lymedisease.org Video I often chock up chest pain to some random episode caused by Lyme or one of it’s co-conditions. Know the signs of Lyme carditis and when to get help.
PhilippiJoy 