It's been a while since I've had to use a cane or wheelchair. But yesterday I found myself with back spasms that had me in need of assistance. And of course, it was a stark reminder that I'm still sick. Some days, I have so much hope that I am getting well. Pain levels will…

Last year, I had 3 good weeks in December. We don't know why. No new meds. No new routines. Just 3 good weeks of shopping, decorating, and enjoying my family. On December 25, things changed. We had a severe flu running through the house and I caught it. We all hate the flu and this…

Those of us with chronic Lyme & other tick borne diseases have a lot of cellular damage and nutritional deficiencies. There are a number of rules important for us to follow so that our bodies are able to become nourished and heal. Most of these rules are pretty clear cut - no alcohol, no smoking, diet…

My artist daughter was working on a drawing when she accidentally spilled a little coffee on the paper. She quickly got up and grabbed a tissue to sop up the wetness. I felt bad for her, until she looked at the picture and simply said "texture". It's the old lemonade adage lived out in art.…

I am a very active person. I love to hike and kayak - and I love doing all things crazy with my husband and kids.  Of course, life has changed over the years.  10 years ago, when I was first hit by this disease, I had to learn manage my energy and pain so that…

My cousin friend shared her heart with me last night about the difficulties of reading my posts because it's hard to read, to know, what I live thru. Her words of love and compassion hit me so deeply and made me think about the people who read my blog. I've never given any thought to…

I am almost done with my 3rd week of this intense protocol. 3 antibiotics via IV (rocephin, cubicin, minocycline) 5-7 hours a day/5 days a week.   It's been rough. The first few days of each week are pretty intense. Lots of pain, numbness, digestive trauma, muscle weakness, drowsiness, dizziness - and just a general…