Sometimes when people hear about some of my symptoms, they offer advice suggesting that I have something else going on. For example, I say I have neuropathy and they may say “it sounds more like diabetes”. I get it - I do the same thing in reverse. Tell me you have ME/CFS or fibromyalgia or…
Blood Test Results
For Lyme+ patients who are not improving with either standard or alternative treatments, it’s important to consider what may be impeding recovery. Lyme can trigger or be accompanied by so many conditions and other tickborne diseases, which is why I call it Lyme+. I have done treatments that help me improve, I start to get…
What Happens When the Body Gets Infected?
Let’s start by identifying the primary pathogens that invade our bodies: Bacteria Viruses Parasites Protozoa / malaria and malaria like organisms Fungus Your immune system is designed to kill these pathogens - many times successfully but creating symptoms like fever, headache, body aches, rashes, fatigue and inflammation. When your body isn’t able to eradicate the…
I’ve heard so many times people say Lyme isn’t fatal. Someone even once told me that it was good my diagnosis wasn’t for something serious like cancer. The link below is about a woman who recently died from a babesia infection (co-infection). Despite the comment by the news reporter, co-infections are in fact quite common.…
Fear & Ignorance
I participate in several online support groups for people with Lyme+. I always hope to learn about treatments that are helping people, but more importantly, I hope I can help someone who may be feeling a little lost. There are 2 issues I see with people in this group: 1. FEAR - people who have…
You would think the Lyme community would be excited to learn that a Lyme vaccine is on the horizon (2026). That’s just not the case. In fact, there are many - MANY - questions and concerns surrounding this effort. This is not the first Lyme vaccine - previous efforts did not go so well. The…
Lyme Disease – “The Big Picture”
This summer marks 18 years I’ve been been sick and 11 years since I became disabled. One of the most frustrating parts of this illness is how poorly it is understood. If you know someone with Lyme (or who is chronically sick and doctors don’t know why), take the time to watch the video below.…
There’s More to Lyme
Recently I’ve heard a few comments that reminded me how little people understand about Lyme+. Social media and digital communication lets people make comments they would never make in person. One woman lectured me for not doing all she thought I should for our community. She said I’m using my sickness as an excuse. When…
LEARN ABOUT LYME
Recently, I started following the story of a little girl who suddenly stopped talking. Her parents were eventually able to learn about Lyme Literate Medical Doctors and found proper treatment for their daughter. She is thankfully improving, but has a long road ahead. Today, I was reading a follow up post on the girl and…
Actually, people do die from Lyme disease…
In learning that I have Lyme disease, someone recently stated "well at least it's not deadly". I know people mean well, and I am not angry about the statement. I do, however, want to clear the air about this topic. Actually, people do die from Lyme disease. Dr. Neil Spector, a doctor who found his…
PhilippiJoy 