In addition to daily doctor visits, you spend 5-6 hours in various therapies each day. These are tailored by your doctor to the needs of your body. Let me take a moment here to say the gals who coordinate these therapies are essentially a therapy in themselves with their smiles and laughter, and the love…
Bullseye! And more common Lyme symptoms
I post an awful lot about Lyme and tick disease. I sometimes feel like I'm being obnoxious about it and I wonder if others get tired of seeing it. And then I get a text with a picture of a perfect bullseye rash with the question: "Is this Lyme?" I hate that Lyme continues to…
Lyme Disease Awareness Month
It's been a while since I've posted - honestly, I just haven't been sure what to say. Not much has changed (in the fact that I'm not much better, not much worse) and yet there has been a lot going on - I had a blood clot and had to have my picc line removed,…
Dr Klinghardt
There is a free online seminar this week focused on chronic Lyme. There are 4 or 5 talks each day and I have been listening intently to each one, hoping something will resonate with me as a next step or something to add to my current treatment protocol. Today's session included a conversation with…
Daryl Hall & Dr Horowitz Interview
Daryl Hall & Dr Horowitz Interview on Lyme Disease Even tho Daryl was sick only about a year before being diagnosed and starting treatment, he had a long road to recovery and continues to have flair ups. Like I've said many times, every case of Lyme is different. I pray to be well one day…
Lyme Interview
If you are new to Lyme or just want a better understanding of the Lyme diagnosis and treatment challenges, this is a great interview with LLMD Dr. Steven Phillips and singer/songwriter Dana Parish. Dr. Phillips explains what Lyme is and the issues in the medical community and Dana discusses the challenges patients have with finding…
Lyme Disease: Did You Know?
Lyme disease is the fast growing vector-borne, infectious disease in the United States. Surprised? Many people I talk to have heard of lyme disease but really don't know anything about it. So how is it possible that it is having such an enormous impact on the health of our country? Here are some other facts…
Mayday Protest
On May 22 and 23, Lyme disease supporters will be protesting in front of the IDSA (Infectious Disease Society of America) building in Arlington, VA in an effort to raise awareness about chronic lyme disease and fight for those suffering with the disease to gain critical medical attention they need. (For more information on the…