Lyme isn’t just one disease -most people can effectively fight the Lyme bacteria without medical intervention.
When I say Lyme, I’m talking about a complex, chronic sickness that encompasses a wide range of diseases and conditions. Some doctors call it “multi-systemic infectious disease syndrome”. It literally affects every cell in your body – tissue, blood, organs.
I have such long lists of symptoms and diagnosis’ that it’s almost embarrassing. Many doctors have stared at me with blank expressions – I can almost hear them thinking “hypochondriac!”
We have to stick together and support each other in trying to find solutions to the things that keep eating our bodies. We need to share our stories and help each other find answers.
Feel encouraged to share your stories too!
My diagnosis’s since 2014:
Lyme (borrelia) – spirochete bacteria
Bartonella – malaria like organism
Babesia – red blood cell parasite
Ehrlichiosis- anaplasmosis bacteria
Dysautonomia: POTS – Postural Orthostatic Tachycardia Syndrome (when I stand up, my heart rate goes up, blood pressure goes down)
MCAS – Mast Cell Activation Symdrome (body is always in a state of allergic reaction)
CCI – Cranial Cervical Instability (actually it’s my whole neck) – loos ligaments make it hard to hold up my head – nothing good happens when I’m upright
PsA – Psoriatic Arthritis (not officially diagnosed yet – I see a specialist on 5/3) – 30% of PsA patients have had Lyme – I have psoriasis and I have arthritis so we think this one is likely
You can learn more about these in the posts below. I want to encourage you to reach out and ask questions. I don’t have all the answers – but I will help you as much as I can.
PhilippiJoy 