"War has a way of distinguishing between the things that matter and the things that don't." ~Downton Abbey Anyone who has experienced severe illness has been at war. My family and I have fought battle after battle with Lyme+ and I can tell you that we understand that quote very well. Things that used to…
It’s OK to Hurt
It's ok to hurt. It's ok to be sick. My husband says these things often. Not because he is ok with me being in pain or being sick - he is reminding me that what I am feeling is real. Even as I lie here this morning with severe muscle pain and feeling like I…
Update: July 22 2016
At my last in office appt my doctor told us about a recent study at John Hopkins which combines multiple IV abx to attack various forms of Lyme. Doxy is a key one but I was on that last year and I did not tolerate it so that's out. I've been on rocephin for a…
Daryl Hall & Dr Horowitz Interview
Daryl Hall & Dr Horowitz Interview on Lyme Disease Even tho Daryl was sick only about a year before being diagnosed and starting treatment, he had a long road to recovery and continues to have flair ups. Like I've said many times, every case of Lyme is different. I pray to be well one day…
The Woman I’ve Become
My life has not taken the path society deems "normal". I did a lot of stupid things when I was young - more so than most. I became a mom at 21 without a partner. When my little girl came along I grew up and got serious about life. I worked...a lot...and hard. I entered…
Hold Your Peace
And Moses said to the people, "Do not be afraid. Stand still, and see the salvation of the LORD, which He will accomplish for you today. For the Egyptians whom you see today, you shall see again no more forever. "The LORD will fight for you, and you shall hold your peace." Exodus 14-13-14 ________________________…
Update: June 28 2016
After stopping IV for a month, the pain became too difficult so we resumed 1 of the antibiotics. It has helped some, but I am still struggling with head, neck and back pain - among other miscellaneous issues. Symptoms currently are more indicative of bartonella and babesia so those become the primary treatment focus. John…
Fight
Well I am about 10 days into the parasite protocol and I'm still alive, so that's good then, eh? (For whatever reason, my mind is thinking with a British accent / not proper British English, just a play on American English with an occasion twist of words. I don't know why, but play along, won't…
Treatment Update: Parasites
The mold treatment has been very effective. My C4a levels dropped from 18,800 to just under 3,000 (not quite normal, but close enough for now). I had a couple of pretty good weeks, followed by a massive crash that we believe is due in some part to parasitic overload. I am continuing treatment for the mold, but…
The Good, the Bad and the Ugly
The Good: we have more answers and we have new treatments underway. The Bad: I have levels of lead in my body that are (as my doctor puts it) "respectable" and as high as those who have been affected by the water contamination in Flint. The Ugly: I have mycotoxin levels that are through the roof. …
PhilippiJoy 