The most recent episode of New Amsterdam had a patient in the ER with headaches. The doctor spent hours with this woman and finally diagnosed her with Lyme disease. The head of the ER was upset the doctor spent so much time with one patient - she told him there are over 300,000 cases a…
Christmas
Christmas is my favorite time of year. I love the colors and lights and the feeling of magic and joy that come with beautiful decorations and music filling my home. It can also be a reminder of all the things I can’t do and all the ways I cant share those feelings with my…
The Part of Me You Never See
I haven't kept up on my posts here - largely because life has been so overwhelming that my brain hasn't been able to function well enough to do more than very basic tasks. Most people only see me when I am out of the house and have showered and brushed my hair and maybe put…
Terrible, Horrible, No-Good Very Bad Days
The other night, my family and I watched the movie "Alexander and the Terrible, Horrible, No-good, Very Bad Day". It's a story of a boy who can't seem to catch a break. Everything he does, everywhere he goes, things just don't turn out for the good. His family on the other hand, seem to…
Anniversaries
Every year, certain dates stand out as being particularly special, my kids birthdays, our anniversary, the day my husband asked me to marry him, Christmas - all special days that bring happy memories to the forefront of my mind. July 10, while not necessarily a happy day, was a pivotal day in my history. I…
Hope is a tease…
"Hope is a tease designed to prevent us from accepting reality." It's a dangerous thing to give up hope altogether. Without hope, what reason do we have to live? But somehow we must also be careful to not have so much hope that we lose sight of the reality in which we live. As the…
Dr Klinghardt
There is a free online seminar this week focused on chronic Lyme. There are 4 or 5 talks each day and I have been listening intently to each one, hoping something will resonate with me as a next step or something to add to my current treatment protocol. Today's session included a conversation with…
Discouragement
Discourage: to deprive of courage, hope, or confidence; dishearten; dispirit. Most days, I have great hope. I don't have unreachable expectations that I will get well overnight. I don't even have expectations that I will be completely healed one day. But I do have hope that I will continue to heal and improve. Then…
I’m still sick
It's been a while since I've had to use a cane or wheelchair. But yesterday I found myself with back spasms that had me in need of assistance. And of course, it was a stark reminder that I'm still sick. Some days, I have so much hope that I am getting well. Pain levels will…
If Only…
This past week has been one of the hardest in a while. Started out with a good visit to the Lyme doc in the Bay Area, a trip that doubled as girl time with my daughters. Came home and crashed hard. Stabbing pain in my neck and head was unbearable. Hands and feet were numb…
PhilippiJoy 