Christmas came way too fast this year! It’s here and I am anticipating with excitement cerebrating the birth of Christ tonight and tomorrow with my husband and our children and grandson. As much as I love these days, they can also bring some disappointment and frustration. It’s been hard trying to get ready the last…
Actually, people do die from Lyme disease…
In learning that I have Lyme disease, someone recently stated "well at least it's not deadly". I know people mean well, and I am not angry about the statement. I do, however, want to clear the air about this topic. Actually, people do die from Lyme disease. Dr. Neil Spector, a doctor who found his…
Holding Onto The Holidays
The holidays can be really taxing on a sick body. Traditions are an amazing part of the magic of Christmas, but when they cause a setback on your health, it may be better to change them up a little. When I first got sick (way back in 2006), much of my life had changed. My…
“There’s No Way of Knowing…”
The Fault In Our Stars is a story of 2 teenagers with terminal cancer. They go through ups and downs - periods of time they feel decent, and then they don’t. “There’s no way of knowing your last good day is your last good day - at the time, it’s just another decent day.”The Fault…
Healing Is Hard In This Life
One of the hardest things about Lyme+ is that no two days are alike. I have days when I feel fairly good. I rode a bike a few days ago. But today I’m laying in bed in a lot of pain and every time I get up I feel dizzy, weak and nauseated. That doesn’t…
Jump Creek Waterfall
Today we took a short walk (very short - 1/4 mile each way) to Jump Creek Waterfall. It tanked me! I slept for hours after and am going back to bed after I finish uploading pics here. I couldn’t have done this 6 months ago. I may not be able to do it tomorrow. So…
Dodge City Kansas
Statues Around Town AT & SF Train Boot Hill Museum
8/27 – IN to IL to MO
Amish parking at Dollar General Illinois surprised us - we actually didn’t realize we would pass through a section of it. Still loving the wide open spaces and all the rivers and lakes. St. Louis A few years ago, on another RV trek, we got off the freeway in St Louis to do a little…
Better Is Relative
I have moments when I get discouraged but for the most part, I am always looking for positive forward motion. When I compare myself to where I’ve been - bed-ridden, wheelchair, dying - I am most definitely better. That doesn’t mean I’m well. I still have a long way to go and while I do…
Rise & Fall – It’s Like A Rollercoaster Sometimes
I had a couple of pretty good months - up and out of bed most days, able to clean and cook and take walks. I’m always so encouraged when there is obvious movement in the right direction. I start to think about how life might change if I can go back to work and do…
PhilippiJoy 